EHDS2 Pilot

Pilot for a European Health Data Space on secondary use of health data

The EHDS2 Pilot project will build and test a first version of European Health Data Space (EHDS) by interconnecting data provider platforms in a network of nodes. In doing so, the project will be able to test a user journey for creating, deploying and running health data research projects at EU level: the network will allow project researchers to query the metadata catalogs of all the nodes, to request access to selected data via a single common form and, possibly, if needed, to transfer data at one place. To do so, the EHDS2Pilot will define and build an IT infrastructure connecting nodes and define common standards for security, metadata catalogs, data quality and interoperability, and legal requirements based on use cases.

The EHDS2Pilot will fully operate the selected use cases in order to demonstrate the potential powerful impact of mobilizing and exploiting health data from several countries for public health, research, innovation and policy and healthcare systems improvement. Based on this experiment, the EHDS2Pilot will provide complete evaluation of the project and build recommendations for the EC about data standards, legal requirements, costs and economic model needed to scale up the tested network. The project is composed of 16 partners that are national hubs, ERICs or research Infrastructures, EU agencies and associations in the area of health.

CSC represents ELIXIR in the EHDS2 in coordination with the European ELIXIR Hub in one of the use cases where European data management capabilities fomr genomic data are applied to support the use case of colorectal cancer, one of the drivers of EHD2 pilot.